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What I Have Learned
I am a father of a 5-year-old
Autistic boy and will always be...
David was diagnosed with Autism at the age of 18 months.
At the time, not knowing what Autism was, I led myself to believe
that this was a temporary issue and that a few sessions of a moderated
home therapy program would bring him back up to speed. Fortunately,
my wife Catherine was considerably more intuitive and sought the
help from therapists from the Alpine Learning Group (ALG), geneticists
and psychiatrists to develop a long-term plan of care and education.
Along with the torturous IEP’s and legal battles
that we went through, there were failed attempts to get David out
of the home environment and into schools that were either inadequate
or unprepared to teach Autistic children. We as parents were exhausted
and frightened that our son was suffering terribly from the new
track of public education. It became very difficult to actually
see the degradation in his behavior and the sight of him pleading
us to correct this hurdle. Then a miracle happened…
We received a call from our school district that David
would be beginning the next semester (fall ’02) at ALG. This
would be one of the greatest days that our family would remember
as we knew the dedication and effectiveness that each teacher had
at ALG was beyond any model we had seen thus far. As I spent my
first day with David at ALG, I saw things in him that I never knew
existed. He was starting to ride a bike, he quickly learned how
to prepare his lunch and most importantly, he led me around ALG
holding my hand, with a little smile and a gleam in his eye that
seemed to say, “We did it…. We actually got in here.”
I will never forget that moment.
On September 28, 2002, I lost our battle with Autism
when David passed away from an accidental drowning. All of my hopes
and dreams, all of the things I planned to teach him, everything
I had aspired to, had suddenly ended. And once again, my wife took
the high road and immediately wanted to do more. Catherine got in
touch with Linda Meyer, from ALG, to see what she knew of tissue
donor programs that targeted Autism. Fortunately, we were able to
quickly get in touch with the Princeton tissue donor program to
donate his eyes that a little boy or girl may see as well as donating
his brain for research into genetic causes within Autism. This is
a difficult decision for any parent to make but was made blindly
as we knew that we would be helping others that share similar difficulties.
I will always be eternally grateful to everyone at
Alpine for their care and dedication to David. I will always be
grateful to my wife Catherine for giving me the strength I needed.
I will always be grateful that I had David in my life because he
taught me more in six years then I could have ever dreamed.
I am a father of a 5-year-old
Autistic boy and will always be... |